Question:
sounds like the MONSTER is rearing his ugly head, hope you get some meds soon, I have been on Copaxone for 8 years and no change in my yearly MRI in 4 years. however that does not mean I don’t get worse because I do, I have changed a lot in 4 years and don’t understand how come the MRI shows no changes. GOOD LUCK..I really mean that and welcome to the group. Joyce
Response:
solumedrol is a sort of quick fix but like Jennifer says you are hungry and gain weight, I had solumedrol 3 years in a row and each time gained 10 pounds that never left me, so that was an unwanted 30 pounds. I have refused it ever since. I must say their was only 2 occasions when my neuro has suggested it in the past few years, but I said "look at me" fat and horrible, he said you are not fat you are pleasantly plump. well when I used to wear a size 8 and now a 18 all in 12 years what’s wrong with this picture. MS just slows you down and with that a lot of us get the weight gain, however some of us lose weight so I don’t have an answer to that one. Joyce
Response:
I’ve lost around 25lbs since my symptoms started getting heavy in July. Mainly because i’ve lost my appetite, not to mention bowel problems. But if steroids can help knock me out of this long and drawn out attack(s) i’d take an extra 10lbs back on. Over the last few days i’ve noticed some symptoms returning and my energry level really dropping, just hope on not going down again. Guess i’ll keep my feet up and fingers crossed. Thanks for the warm welcome guys. Nick "Joyce" <j.chil…@comcast.net> wrote in message
news:LradnV8rA6nAFXTcRVn-sQ@comcast.com… – Hide quoted text — Show quoted text -> solumedrol is a sort of quick fix but like Jennifer says you are hungry and > gain weight, I had solumedrol 3 years in a row and each time gained 10 > pounds that never left me, so that was an unwanted 30 pounds. I have refused > it ever since. I must say their was only 2 occasions when my neuro has > suggested it in the past few years, but I said "look at me" fat and > horrible, he said you are not fat you are pleasantly plump. well when I used > to wear a size 8 and now a 18 all in 12 years what’s wrong with this > picture. MS just slows you down and with that a lot of us get the weight > gain, however some of us lose weight so I don’t have an answer to that one. > Joyce
Response:
"Nick" <b…@blah.com> wrote in message
news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… – Hide quoted text — Show quoted text -> Does this seem like RRMS? > I’m a 24 yo male that was diagnosed with MS on the 22 of december. About a > year ago or so I had a weird numbness in one or two fingertips that lasted > a > month or so and dissapeared. Also I noticed that when I was bending my > neck > the numbness in my fingers worsened, thinking it was due to improper > posture and to much time on the computer! I ignored it. I didn’t really > start taking a real notice to my symptoms until July 04, I was on a > ASP.net > course and I noticed when I woke up in the morning, my left foot felt > numb > and my left leg didn’t seem to work correctly. Although it would move it > just kinda felt floppy. Over the next few days I had a altered sensations > in > my left leg up to my groin area, I kept up my daily 3km walks with a > slight > limp and my leg seemed to come around after 2-3 weeks. The altered > sensations cleared up although I still had some numbness in my left foot. > Early September 04 I had a couple bouts of extreme fatigue, one while I > was > picking up some groceries. It was like I came down with the flu in 30 > seconds, I had to finish up quick and went home to lay down. Between > Oct – > Nov I had some new symptoms, but they seemed to slowly worsen, and kind of > blend together making it hard to tell if if they are attacks. The fatigue > over this time seemed to stay over me like a black cloud. Stopping me from > my walks and requiring me to take naps, every day after getting off from > work. The prior numbness I had in my left foot, worsened to the extent of > not being able to feel my toes, then the bottom of my foot to the top. > Next > my right foot started getting numb as well. The muscles in my feet started > getting extremly tight and stiff. Also during this time, I had a couple > nights where my jaw got extremely tired for no reason, and I wasn’t eating > beef jerkey 
. I also noticed alot of sharp muscle twitches that would > happen all over my body, in my leg , fingers, arms, face. After this > I > noticed both hands becoming shaky especially when holding something heavy, > as well as extremly stiff fingers. These symptoms seemed to slowly worsen > until Dec 9 when I was first able to see a Neuro, living in Canada and our > medical system sucks! was waiting since July to see one. Anyways the > morning > of the 9th both legs seemed to be weak and my balance was off, it felt > like > I had one to many to drink. Neuro told me it was probable MS and I needed > a > MRI, so I could either wait to get one through our medical system, which > would be free, but i’d have to wait 4-6 months!!, or I could get a > private > MRI and get the results in a couple of days, hard choice! $1500 and a > week > later I recieved a call from my neuro on the 22nd of Dec telling me it was > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my > legs > continued to weaken, and the fatigue was extreme, I had trouble walking > to > the bathroom without hanging on the walls. The weakness in my legs slowly > improved over the last month, where I can walk up and down stairs pretty > quickly, and my balance has a improved a bit. I still sway when standing > still a bit and forget about walking a straight line with one foot in > front > of the other. But both feet remain extremely numb, i’ve stubbed my toes > pretty bad a couple times and could barely feel anything. As of today Jan > 14 > i’m noticing circulation problems , my fingernails and toenails are blue > ish most of the time. Getting alot of stiffness in my left leg and > numbness > still remains in both feet. Hands are always tingly and shaky when holding > something heavy or still for to long. I’m currently on a two month > waiting > list to get into the local MS clinic to get on betainferons and have yet > to > take anything for these symptoms no steroid treatment etc. > I’m just a kind of worried about my symptoms over the last few months, > being > more of a gradual decline then attacks. I wouldn’t mind getting some > opinions from people with experience! > Nick
Im sorry youre stuck with Canadian healthcare. The damage Canadas healthcare has cost you may be irreversible. Drive to the states and enter an ER and tell them your having an attack and will pay cash for a solumedrol drip, and then do it. Socialized medicine always sucks. Only the rich can afford proper care that way. In the meantime, only drink grape juice, tomato juice, orange juice, green tea, and chocolate milk. Theres no need for water. That will give you lots of antioxidents which help stem damage. Rob Rob
Response:
Nick – you have started out pretty good by coming to this ng. However you should search around the web – there are many good sites about dietary intervention. That is something you can do without the doctor and other treatments. Try searching on embry, swank, and mcdougal Celeste
Response:
Hi Nick I also live in Halifax area – on eastern side of the harbour. I see Dr Bhan irregularly & have an appt in Feb. He’s a good doc, so is Dr Murray. All the neuros associated with the MS clinic are good, I think. The city has other knowledgeable neuros but they are even slower getting access to things like MRIs. When my son David was dx’d about 4 yrs ago there was no delay in getting him from a GP to the clinic, onto Solymed, an MRI, etc. I think a lot of it has to do with how the various doctors view it – Dave’s situation then was pretty bad and he has deteriorated very quickly, even tho he has been on Rebif, and he is now in an extended care facility. If you want any more personal information, email me at gay…@eastlink.ca "Nick" <b…@blah.com> wrote in message
news:pjeGd.210943$Np3.8901448@ursa-nb00s0.nbnet.nb.ca… Living in Halifax, NS , This is extremely frustrating. I still wouldn’t have a dx if I didn’t enter outpatients in Nov, complaining about two numb feet. After a 8 hour wait before I was seen the doctor assumed it was a vitamin deficency. I told him that my GP has been trying since summer to get me a Neurologist. Low and behold 2 days later I had an apt with a neurologist. Just before xmas when I was last speaking with my neuro I told him how my symptoms are slowly getting worse. He told me that i’ll have to wait to get into the MS clinic before any medication can be given. Which should be 6-8 weeks and to hang in there. I have tried contacting the MS clinic, but just get bumped to a voicemail and out of the 3 msg’s i’ve left nothing has been returned. I guess i’ll have to step up the calls to see if I at least can talk to someone!!! and maybe make a visit if I still get nowhere with the calls. I’ve also been into my GP early this week, and told him the situation. He also said i’ll have to stick it out until I get into the ms clinic. He also mentioned that sometimes it takes up to 3-4 months to get in. He seemed to think the 6-8 weeks my neuro told me was good. I find this very sad, that I have to fight so fierce to get anything done, when 40% of my salary is gone in taxes as well as 15% on everything I buy. I’d much rather have a health system that I have to pay for everything, but that things would actually get done. I was off work for two weeks, between Dec 9 and xmas. But now i’m working part time mainly from home. I only have to head in maybe 2 days of the week. Still the office has some major heating problems and Friday when I was in the temp was 29. I had to leave I started having problems walking dizzy spells, not much sympathy from my co-workers and boss. I don’t want to get into the problems i’ve been having at work. Thanks for the advice. I guess i’ll have to start throwing my weight around. Its extremely hard when some days i’m so fatigued I just feel like lying down all day. Nick "Jennifer" <Jnos…@shaw.ca> wrote in message
news:9TaGd.85448$Xk.16510@pd7tw3no… – Hide quoted text — Show quoted text -> Rob, Solumedrol doesn’t help with symptoms really. It may hault an attack or > make it shorter. For me, they do diddly squat except make me gain weight, > turn into bitch woman, and become an insomniac. > Nick, where abouts in the country are you? If you make a pain of yourself > enough people do listen. AND when I had my first attacks (3 at least in a > row) I was 23 years old. I had one attack that left me not able to do much. > I started improving, went shopping at the mall ’cause I was excited I could > walk again, and ended up with another flare up lasting another few months. > Got better from that one and had another. > YOU NEED TO REST!. Don’t do walking, take a leave from work, etc. Trust me, > I basically didn’t do much for at least 6 months (sat at home, used a walker > and a cane) and here I am 3 years basically symptom free (ok, occasional > little flare but no major muscle weakness) > Call the MS clinic and ask to be on their wait list for cancellations. Go to > your GP and tell him/her how you are doing. When my GP suspected I had MS > she went and bugged pretty much everyone she knew because she was really > concerned about me. My neuro got me in for an MRI quickly because he bugged > and bugged people. I also got into the clinic faster because I basically > made such a nuisance they had to listen. > I’ll say it again..call the MS clinic and ask to speak to the relapse nurse. > Tell them whats going on and they will often be able to get you on steriods. > Be warned about them..they are nasty buggers and have nasty side effects but > do work for many people in stopping a flare up. > Jen > "Rob Duncan" <robdun…@gbronline.com> wrote in message > news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… > > "Nick" <b…@blah.com> wrote in message > > news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… > > > Does this seem like RRMS? > > > I’m a 24 yo male that was diagnosed with MS on the 22 of december. About > a > > > year ago or so I had a weird numbness in one or two fingertips that > lasted > > > a > > > month or so and dissapeared. Also I noticed that when I was bending my > > > neck > > > the numbness in my fingers worsened, thinking it was due to improper > > > posture and to much time on the computer! I ignored it. I didn’t really > > > start taking a real notice to my symptoms until July 04, I was on a > > > ASP.net > > > course and I noticed when I woke up in the morning, my left foot felt > > > numb > > > and my left leg didn’t seem to work correctly. Although it would move it > > > just kinda felt floppy. Over the next few days I had a altered > sensations > > > in > > > my left leg up to my groin area, I kept up my daily 3km walks with a > > > slight > > > limp and my leg seemed to come around after 2-3 weeks. The altered > > > sensations cleared up although I still had some numbness in my left > foot. > > > Early September 04 I had a couple bouts of extreme fatigue, one while I > > > was > > > picking up some groceries. It was like I came down with the flu in 30 > > > seconds, I had to finish up quick and went home to lay down. Between > > > Oct – > > > Nov I had some new symptoms, but they seemed to slowly worsen, and kind > of > > > blend together making it hard to tell if if they are attacks. The > fatigue > > > over this time seemed to stay over me like a black cloud. Stopping me > from > > > my walks and requiring me to take naps, every day after getting off from > > > work. The prior numbness I had in my left foot, worsened to the extent > of > > > not being able to feel my toes, then the bottom of my foot to the top. > > > Next > > > my right foot started getting numb as well. The muscles in my feet > started > > > getting extremly tight and stiff. Also during this time, I had a couple > > > nights where my jaw got extremely tired for no reason, and I wasn’t > eating > > > beef jerkey . I also noticed alot of sharp muscle twitches that would > > > happen all over my body, in my leg , fingers, arms, face. After > this > > > I > > > noticed both hands becoming shaky especially when holding something > heavy, > > > as well as extremly stiff fingers. These symptoms seemed to slowly > worsen > > > until Dec 9 when I was first able to see a Neuro, living in Canada and > our > > > medical system sucks! was waiting since July to see one. Anyways the > > > morning > > > of the 9th both legs seemed to be weak and my balance was off, it felt > > > like > > > I had one to many to drink. Neuro told me it was probable MS and I > needed > > > a > > > MRI, so I could either wait to get one through our medical system, > which > > > would be free, but i’d have to wait 4-6 months!!, or I could get a > > > private > > > MRI and get the results in a couple of days, hard choice! $1500 and a > > > week > > > later I recieved a call from my neuro on the 22nd of Dec telling me it > was > > > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my > > > legs > > > continued to weaken, and the fatigue was extreme, I had trouble walking > > > to > > > the bathroom without hanging on the walls. The weakness in my legs > slowly > > > improved over the last month, where I can walk up and down stairs pretty > > > quickly, and my balance has a improved a bit. I still sway when standing > > > still a bit and forget about walking a straight line with one foot in > > > front > > > of the other. But both feet remain extremely numb, i’ve stubbed my > toes > > > pretty bad a couple times and could barely feel anything. As of today > Jan > > > 14 > > > i’m noticing circulation problems , my fingernails and toenails are > blue > > > ish most of the time. Getting alot of stiffness in my left leg and > > > numbness > > > still remains in both feet. Hands are always tingly and shaky when > holding > > > something heavy or still for to long. I’m currently on a two month > > > waiting > > > list to get into the local MS clinic to get on betainferons and have yet > > > to > > > take anything for these symptoms no steroid treatment etc. > > > I’m just a kind of worried about my symptoms over the last few months, > > > being > > > more of a gradual decline then attacks. I wouldn’t mind getting some > > > opinions from people with experience! > > > Nick > > Im sorry youre stuck with Canadian healthcare. The damage Canadas > > healthcare has cost you may be irreversible. Drive to the states and > enter > > an ER and tell them your having an attack and will pay cash for a > solumedrol > > drip, and then do it. Socialized medicine always sucks. Only the rich > can > > afford proper care that way. > > In the meantime, only drink grape juice, tomato juice, orange juice, green > > tea, and chocolate milk. Theres no need for water. That will give you > lots > > of antioxidents which help stem damage. > > Rob > > Rob
Response:
well yes, im not saying don’t exercise. What I am saying is don’t be a dumb ass and fele you have to get out there and exercise when you can’t. If I was feeling fatigued and had weak legs would I go skating…hell no! That’s an accident waiting to happen. When I have a flare up, rest is what my body wants and so I give it to it. On the days I feel good I dowhat I can Jen "Rob Duncan" <robdun…@gbronline.com> wrote in message
news:MIidnRno24yDlnfcRVn-iA@gbronline.com… – Hide quoted text — Show quoted text -> Just to be clear, exercise has been scientificaly proven to be good for MS. > Rest has not. Quite the opposite in fact. Do as much as you dare. > Rob > "Jennifer" <Jnos…@shaw.ca> wrote in message > news:VekGd.87547$8l.40523@pd7tw1no… > > Craig…just to add to your comments…. > > I agree you should do what you can HOWEVER if you are fatigued, can’t walk > > well I don’t think it would be helpful to your body to do a 5 km run/walk. > > Listening to your body will give you the best results. > > I am able to figure skate (4 times a week), teach school full time, > > volunteer, coach special olympics without my MS going wonky. However, when > > I > > get run down I take a breather because my body will start to protest big > > time. Again, like you said, each person is different and I am lucky to be > > in > > the position I am in, however putting your health at risk to do as much as > > you can might not be the best. > > Jen (stupid arches..my feet hurt. AM now the proud owner of new and > > expensive running shoes. Aye yi yi) > > "Craig Garrison" <cga…@mastnet.net> wrote in message > > news:5kcju0d6l463umuvbu6pneennnt9u27ucv@4ax.com… > >> Nick, > >> Since nobody’s said it yet, I’ll say it because I think it has to be > >> said. > >> No two cases of MS are the same. > >> So, looking beyond diagnosis and categorization, try a treatment for a > >> sufficient period of time, and if it isn’t working, try something > >> else. > >> For me, steroids worked immediately. Betaseron took a little longer > >> to kick in (maybe a month) but I could keep using it all he time. > >> Still, it wasn’t a cure, and I progressed. The bone marrow transplant > >> three years ago put MS in remission. That step, however, is a last > >> resort. > >> I don’t like to contradict others, but you can now tell that I’m going > >> to do just that. There is no evidence that fatiguing yourself > >> increases the rate of disease progression and plenty of evidence that > >> being sedentary is bad for your health. Do as much as you can for as > >> long as you can. > >> Good luck, > >> Craig
Response:
Just to be clear, exercise has been scientificaly proven to be good for MS. Rest has not. Quite the opposite in fact. Do as much as you dare. Rob "Jennifer" <Jnos…@shaw.ca> wrote in message
news:VekGd.87547$8l.40523@pd7tw1no… – Hide quoted text — Show quoted text -> Craig…just to add to your comments…. > I agree you should do what you can HOWEVER if you are fatigued, can’t walk > well I don’t think it would be helpful to your body to do a 5 km run/walk. > Listening to your body will give you the best results. > I am able to figure skate (4 times a week), teach school full time, > volunteer, coach special olympics without my MS going wonky. However, when > I > get run down I take a breather because my body will start to protest big > time. Again, like you said, each person is different and I am lucky to be > in > the position I am in, however putting your health at risk to do as much as > you can might not be the best. > Jen (stupid arches..my feet hurt. AM now the proud owner of new and > expensive running shoes. Aye yi yi) > "Craig Garrison" <cga…@mastnet.net> wrote in message > news:5kcju0d6l463umuvbu6pneennnt9u27ucv@4ax.com… >> Nick, >> Since nobody’s said it yet, I’ll say it because I think it has to be >> said. >> No two cases of MS are the same. >> So, looking beyond diagnosis and categorization, try a treatment for a >> sufficient period of time, and if it isn’t working, try something >> else. >> For me, steroids worked immediately. Betaseron took a little longer >> to kick in (maybe a month) but I could keep using it all he time. >> Still, it wasn’t a cure, and I progressed. The bone marrow transplant >> three years ago put MS in remission. That step, however, is a last >> resort. >> I don’t like to contradict others, but you can now tell that I’m going >> to do just that. There is no evidence that fatiguing yourself >> increases the rate of disease progression and plenty of evidence that >> being sedentary is bad for your health. Do as much as you can for as >> long as you can. >> Good luck, >> Craig
Response:
I suppose I should have said works for some people. But alas, my weekend brain is on and my smart weekday thinking brain has gone awya for the weekend Jen "Rob Duncan" <robdun…@gbronline.com> wrote in message
news:lq2dnVO4sMYelHfcRVn-iQ@gbronline.com… – Hide quoted text — Show quoted text -> "Jennifer" <Jnos…@shaw.ca> wrote in message > news:9TaGd.85448$Xk.16510@pd7tw3no… > > Rob, Solumedrol doesn’t help with symptoms really. It may hault an attack > > or > > make it shorter. For me, they do diddly squat except make me gain weight, > > turn into bitch woman, and become an insomniac. > Of course it helps. That it has side effects is another matter altogether. > although there was "one" study claiming it had no benefits. > > Nick, where abouts in the country are you? If you make a pain of yourself > > enough people do listen. AND when I had my first attacks (3 at least in a > > row) I was 23 years old. I had one attack that left me not able to do > > much. > > I started improving, went shopping at the mall ’cause I was excited I > > could > > walk again, and ended up with another flare up lasting another few months. > > Got better from that one and had another. > > YOU NEED TO REST!. Don’t do walking, take a leave from work, etc. Trust > > me, > > I basically didn’t do much for at least 6 months (sat at home, used a > > walker > > and a cane) and here I am 3 years basically symptom free (ok, occasional > > little flare but no major muscle weakness) > > Call the MS clinic and ask to be on their wait list for cancellations. Go > > to > > your GP and tell him/her how you are doing. When my GP suspected I had MS > > she went and bugged pretty much everyone she knew because she was really > > concerned about me. My neuro got me in for an MRI quickly because he > > bugged > > and bugged people. I also got into the clinic faster because I basically > > made such a nuisance they had to listen. > > I’ll say it again..call the MS clinic and ask to speak to the relapse > > nurse. > > Tell them whats going on and they will often be able to get you on > > steriods. > > Be warned about them..they are nasty buggers and have nasty side effects > > but > > do work for many people in stopping a flare up. > > Jen > Which is basically the opposite of what you previously wrote. > Rob > > "Rob Duncan" <robdun…@gbronline.com> wrote in message > > news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… > >> "Nick" <b…@blah.com> wrote in message > >> news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… > >> > Does this seem like RRMS? > >> > I’m a 24 yo male that was diagnosed with MS on the 22 of december. > >> > About > > a > >> > year ago or so I had a weird numbness in one or two fingertips that > > lasted > >> > a > >> > month or so and dissapeared. Also I noticed that when I was bending my > >> > neck > >> > the numbness in my fingers worsened, thinking it was due to improper > >> > posture and to much time on the computer! I ignored it. I didn’t > >> > really > >> > start taking a real notice to my symptoms until July 04, I was on a > >> > ASP.net > >> > course and I noticed when I woke up in the morning, my left foot felt > >> > numb > >> > and my left leg didn’t seem to work correctly. Although it would move > >> > it > >> > just kinda felt floppy. Over the next few days I had a altered > > sensations > >> > in > >> > my left leg up to my groin area, I kept up my daily 3km walks with a > >> > slight > >> > limp and my leg seemed to come around after 2-3 weeks. The altered > >> > sensations cleared up although I still had some numbness in my left > > foot. > >> > Early September 04 I had a couple bouts of extreme fatigue, one while I > >> > was > >> > picking up some groceries. It was like I came down with the flu in 30 > >> > seconds, I had to finish up quick and went home to lay down. Between > >> > Oct – > >> > Nov I had some new symptoms, but they seemed to slowly worsen, and kind > > of > >> > blend together making it hard to tell if if they are attacks. The > > fatigue > >> > over this time seemed to stay over me like a black cloud. Stopping me > > from > >> > my walks and requiring me to take naps, every day after getting off > >> > from > >> > work. The prior numbness I had in my left foot, worsened to the extent > > of > >> > not being able to feel my toes, then the bottom of my foot to the top. > >> > Next > >> > my right foot started getting numb as well. The muscles in my feet > > started > >> > getting extremly tight and stiff. Also during this time, I had a > >> > couple > >> > nights where my jaw got extremely tired for no reason, and I wasn’t > > eating > >> > beef jerkey . I also noticed alot of sharp muscle twitches that > >> > would > >> > happen all over my body, in my leg , fingers, arms, face. After > > this > >> > I > >> > noticed both hands becoming shaky especially when holding something > > heavy, > >> > as well as extremly stiff fingers. These symptoms seemed to slowly > > worsen > >> > until Dec 9 when I was first able to see a Neuro, living in Canada and > > our > >> > medical system sucks! was waiting since July to see one. Anyways the > >> > morning > >> > of the 9th both legs seemed to be weak and my balance was off, it felt > >> > like > >> > I had one to many to drink. Neuro told me it was probable MS and I > > needed > >> > a > >> > MRI, so I could either wait to get one through our medical system, > > which > >> > would be free, but i’d have to wait 4-6 months!!, or I could get a > >> > private > >> > MRI and get the results in a couple of days, hard choice! $1500 and a > >> > week > >> > later I recieved a call from my neuro on the 22nd of Dec telling me it > > was > >> > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my > >> > legs > >> > continued to weaken, and the fatigue was extreme, I had trouble > >> > walking > >> > to > >> > the bathroom without hanging on the walls. The weakness in my legs > > slowly > >> > improved over the last month, where I can walk up and down stairs > >> > pretty > >> > quickly, and my balance has a improved a bit. I still sway when > >> > standing > >> > still a bit and forget about walking a straight line with one foot in > >> > front > >> > of the other. But both feet remain extremely numb, i’ve stubbed my > > toes > >> > pretty bad a couple times and could barely feel anything. As of today > > Jan > >> > 14 > >> > i’m noticing circulation problems , my fingernails and toenails are > > blue > >> > ish most of the time. Getting alot of stiffness in my left leg and > >> > numbness > >> > still remains in both feet. Hands are always tingly and shaky when > > holding > >> > something heavy or still for to long. I’m currently on a two month > >> > waiting > >> > list to get into the local MS clinic to get on betainferons and have > >> > yet > >> > to > >> > take anything for these symptoms no steroid treatment etc. > >> > I’m just a kind of worried about my symptoms over the last few months, > >> > being > >> > more of a gradual decline then attacks. I wouldn’t mind getting some > >> > opinions from people with experience! > >> > Nick > >> Im sorry youre stuck with Canadian healthcare. The damage Canadas > >> healthcare has cost you may be irreversible. Drive to the states and > > enter > >> an ER and tell them your having an attack and will pay cash for a > > solumedrol > >> drip, and then do it. Socialized medicine always sucks. Only the rich > > can > >> afford proper care that way. > >> In the meantime, only drink grape juice, tomato juice, orange juice, > >> green > >> tea, and chocolate milk. Theres no need for water. That will give you > > lots > >> of antioxidents which help stem damage. > >> Rob > >> Rob
Response:
Nick, Since nobody’s said it yet, I’ll say it because I think it has to be said. No two cases of MS are the same. So, looking beyond diagnosis and categorization, try a treatment for a sufficient period of time, and if it isn’t working, try something else. For me, steroids worked immediately. Betaseron took a little longer to kick in (maybe a month) but I could keep using it all he time. Still, it wasn’t a cure, and I progressed. The bone marrow transplant three years ago put MS in remission. That step, however, is a last resort. I don’t like to contradict others, but you can now tell that I’m going to do just that. There is no evidence that fatiguing yourself increases the rate of disease progression and plenty of evidence that being sedentary is bad for your health. Do as much as you can for as long as you can. Good luck, Craig
Response:
Craig…just to add to your comments…. I agree you should do what you can HOWEVER if you are fatigued, can’t walk well I don’t think it would be helpful to your body to do a 5 km run/walk. Listening to your body will give you the best results. I am able to figure skate (4 times a week), teach school full time, volunteer, coach special olympics without my MS going wonky. However, when I get run down I take a breather because my body will start to protest big time. Again, like you said, each person is different and I am lucky to be in the position I am in, however putting your health at risk to do as much as you can might not be the best. Jen (stupid arches..my feet hurt. AM now the proud owner of new and expensive running shoes. Aye yi yi) "Craig Garrison" <cga…@mastnet.net> wrote in message
news:5kcju0d6l463umuvbu6pneennnt9u27ucv@4ax.com… – Hide quoted text — Show quoted text -> Nick, > Since nobody’s said it yet, I’ll say it because I think it has to be > said. > No two cases of MS are the same. > So, looking beyond diagnosis and categorization, try a treatment for a > sufficient period of time, and if it isn’t working, try something > else. > For me, steroids worked immediately. Betaseron took a little longer > to kick in (maybe a month) but I could keep using it all he time. > Still, it wasn’t a cure, and I progressed. The bone marrow transplant > three years ago put MS in remission. That step, however, is a last > resort. > I don’t like to contradict others, but you can now tell that I’m going > to do just that. There is no evidence that fatiguing yourself > increases the rate of disease progression and plenty of evidence that > being sedentary is bad for your health. Do as much as you can for as > long as you can. > Good luck, > Craig
Response:
"Jennifer" <Jnos…@shaw.ca> wrote in message
news:9TaGd.85448$Xk.16510@pd7tw3no… > Rob, Solumedrol doesn’t help with symptoms really. It may hault an attack > or > make it shorter. For me, they do diddly squat except make me gain weight, > turn into bitch woman, and become an insomniac.
Of course it helps. That it has side effects is another matter altogether. although there was "one" study claiming it had no benefits. – Hide quoted text — Show quoted text -> Nick, where abouts in the country are you? If you make a pain of yourself > enough people do listen. AND when I had my first attacks (3 at least in a > row) I was 23 years old. I had one attack that left me not able to do > much. > I started improving, went shopping at the mall ’cause I was excited I > could > walk again, and ended up with another flare up lasting another few months. > Got better from that one and had another. > YOU NEED TO REST!. Don’t do walking, take a leave from work, etc. Trust > me, > I basically didn’t do much for at least 6 months (sat at home, used a > walker > and a cane) and here I am 3 years basically symptom free (ok, occasional > little flare but no major muscle weakness) > Call the MS clinic and ask to be on their wait list for cancellations. Go > to > your GP and tell him/her how you are doing. When my GP suspected I had MS > she went and bugged pretty much everyone she knew because she was really > concerned about me. My neuro got me in for an MRI quickly because he > bugged > and bugged people. I also got into the clinic faster because I basically > made such a nuisance they had to listen. > I’ll say it again..call the MS clinic and ask to speak to the relapse > nurse. > Tell them whats going on and they will often be able to get you on > steriods. > Be warned about them..they are nasty buggers and have nasty side effects > but > do work for many people in stopping a flare up. > Jen
Which is basically the opposite of what you previously wrote. Rob – Hide quoted text — Show quoted text -> "Rob Duncan" <robdun…@gbronline.com> wrote in message > news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… >> "Nick" <b…@blah.com> wrote in message >> news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… >> > Does this seem like RRMS? >> > I’m a 24 yo male that was diagnosed with MS on the 22 of december. >> > About > a >> > year ago or so I had a weird numbness in one or two fingertips that > lasted >> > a >> > month or so and dissapeared. Also I noticed that when I was bending my >> > neck >> > the numbness in my fingers worsened, thinking it was due to improper >> > posture and to much time on the computer! I ignored it. I didn’t >> > really >> > start taking a real notice to my symptoms until July 04, I was on a >> > ASP.net >> > course and I noticed when I woke up in the morning, my left foot felt >> > numb >> > and my left leg didn’t seem to work correctly. Although it would move >> > it >> > just kinda felt floppy. Over the next few days I had a altered > sensations >> > in >> > my left leg up to my groin area, I kept up my daily 3km walks with a >> > slight >> > limp and my leg seemed to come around after 2-3 weeks. The altered >> > sensations cleared up although I still had some numbness in my left > foot. >> > Early September 04 I had a couple bouts of extreme fatigue, one while I >> > was >> > picking up some groceries. It was like I came down with the flu in 30 >> > seconds, I had to finish up quick and went home to lay down. Between >> > Oct – >> > Nov I had some new symptoms, but they seemed to slowly worsen, and kind > of >> > blend together making it hard to tell if if they are attacks. The > fatigue >> > over this time seemed to stay over me like a black cloud. Stopping me > from >> > my walks and requiring me to take naps, every day after getting off >> > from >> > work. The prior numbness I had in my left foot, worsened to the extent > of >> > not being able to feel my toes, then the bottom of my foot to the top. >> > Next >> > my right foot started getting numb as well. The muscles in my feet > started >> > getting extremly tight and stiff. Also during this time, I had a >> > couple >> > nights where my jaw got extremely tired for no reason, and I wasn’t > eating >> > beef jerkey . I also noticed alot of sharp muscle twitches that >> > would >> > happen all over my body, in my leg , fingers, arms, face. After > this >> > I >> > noticed both hands becoming shaky especially when holding something > heavy, >> > as well as extremly stiff fingers. These symptoms seemed to slowly > worsen >> > until Dec 9 when I was first able to see a Neuro, living in Canada and > our >> > medical system sucks! was waiting since July to see one. Anyways the >> > morning >> > of the 9th both legs seemed to be weak and my balance was off, it felt >> > like >> > I had one to many to drink. Neuro told me it was probable MS and I > needed >> > a >> > MRI, so I could either wait to get one through our medical system, > which >> > would be free, but i’d have to wait 4-6 months!!, or I could get a >> > private >> > MRI and get the results in a couple of days, hard choice! $1500 and a >> > week >> > later I recieved a call from my neuro on the 22nd of Dec telling me it > was >> > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my >> > legs >> > continued to weaken, and the fatigue was extreme, I had trouble >> > walking >> > to >> > the bathroom without hanging on the walls. The weakness in my legs > slowly >> > improved over the last month, where I can walk up and down stairs >> > pretty >> > quickly, and my balance has a improved a bit. I still sway when >> > standing >> > still a bit and forget about walking a straight line with one foot in >> > front >> > of the other. But both feet remain extremely numb, i’ve stubbed my > toes >> > pretty bad a couple times and could barely feel anything. As of today > Jan >> > 14 >> > i’m noticing circulation problems , my fingernails and toenails are > blue >> > ish most of the time. Getting alot of stiffness in my left leg and >> > numbness >> > still remains in both feet. Hands are always tingly and shaky when > holding >> > something heavy or still for to long. I’m currently on a two month >> > waiting >> > list to get into the local MS clinic to get on betainferons and have >> > yet >> > to >> > take anything for these symptoms no steroid treatment etc. >> > I’m just a kind of worried about my symptoms over the last few months, >> > being >> > more of a gradual decline then attacks. I wouldn’t mind getting some >> > opinions from people with experience! >> > Nick >> Im sorry youre stuck with Canadian healthcare. The damage Canadas >> healthcare has cost you may be irreversible. Drive to the states and > enter >> an ER and tell them your having an attack and will pay cash for a > solumedrol >> drip, and then do it. Socialized medicine always sucks. Only the rich > can >> afford proper care that way. >> In the meantime, only drink grape juice, tomato juice, orange juice, >> green >> tea, and chocolate milk. Theres no need for water. That will give you > lots >> of antioxidents which help stem damage. >> Rob >> Rob
Response:
http://www.inmotionmagazine.com/hcare/canadahc.html "Rob Duncan" <robdun…@gbronline.com> wrote in message
news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… – Hide quoted text — Show quoted text -> "Nick" <b…@blah.com> wrote in message > news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… >> Does this seem like RRMS? >> I’m a 24 yo male that was diagnosed with MS on the 22 of december. About >> a >> year ago or so I had a weird numbness in one or two fingertips that >> lasted a >> month or so and dissapeared. Also I noticed that when I was bending my >> neck >> the numbness in my fingers worsened, thinking it was due to improper >> posture and to much time on the computer! I ignored it. I didn’t really >> start taking a real notice to my symptoms until July 04, I was on a >> ASP.net >> course and I noticed when I woke up in the morning, my left foot felt >> numb >> and my left leg didn’t seem to work correctly. Although it would move it >> just kinda felt floppy. Over the next few days I had a altered sensations >> in >> my left leg up to my groin area, I kept up my daily 3km walks with a >> slight >> limp and my leg seemed to come around after 2-3 weeks. The altered >> sensations cleared up although I still had some numbness in my left foot. >> Early September 04 I had a couple bouts of extreme fatigue, one while I >> was >> picking up some groceries. It was like I came down with the flu in 30 >> seconds, I had to finish up quick and went home to lay down. Between >> Oct – >> Nov I had some new symptoms, but they seemed to slowly worsen, and kind >> of >> blend together making it hard to tell if if they are attacks. The fatigue >> over this time seemed to stay over me like a black cloud. Stopping me >> from >> my walks and requiring me to take naps, every day after getting off from >> work. The prior numbness I had in my left foot, worsened to the extent of >> not being able to feel my toes, then the bottom of my foot to the top. >> Next >> my right foot started getting numb as well. The muscles in my feet >> started >> getting extremly tight and stiff. Also during this time, I had a couple >> nights where my jaw got extremely tired for no reason, and I wasn’t >> eating >> beef jerkey . I also noticed alot of sharp muscle twitches that would >> happen all over my body, in my leg , fingers, arms, face. After >> this I >> noticed both hands becoming shaky especially when holding something >> heavy, >> as well as extremly stiff fingers. These symptoms seemed to slowly worsen >> until Dec 9 when I was first able to see a Neuro, living in Canada and >> our >> medical system sucks! was waiting since July to see one. Anyways the >> morning >> of the 9th both legs seemed to be weak and my balance was off, it felt >> like >> I had one to many to drink. Neuro told me it was probable MS and I >> needed a >> MRI, so I could either wait to get one through our medical system, >> which >> would be free, but i’d have to wait 4-6 months!!, or I could get a >> private >> MRI and get the results in a couple of days, hard choice! $1500 and a >> week >> later I recieved a call from my neuro on the 22nd of Dec telling me it >> was >> definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my >> legs >> continued to weaken, and the fatigue was extreme, I had trouble walking >> to >> the bathroom without hanging on the walls. The weakness in my legs >> slowly >> improved over the last month, where I can walk up and down stairs pretty >> quickly, and my balance has a improved a bit. I still sway when standing >> still a bit and forget about walking a straight line with one foot in >> front >> of the other. But both feet remain extremely numb, i’ve stubbed my toes >> pretty bad a couple times and could barely feel anything. As of today Jan >> 14 >> i’m noticing circulation problems , my fingernails and toenails are blue >> ish most of the time. Getting alot of stiffness in my left leg and >> numbness >> still remains in both feet. Hands are always tingly and shaky when >> holding >> something heavy or still for to long. I’m currently on a two month >> waiting >> list to get into the local MS clinic to get on betainferons and have yet >> to >> take anything for these symptoms no steroid treatment etc. >> I’m just a kind of worried about my symptoms over the last few months, >> being >> more of a gradual decline then attacks. I wouldn’t mind getting some >> opinions from people with experience! >> Nick > Im sorry youre stuck with Canadian healthcare. The damage Canadas > healthcare has cost you may be irreversible. Drive to the states and > enter an ER and tell them your having an attack and will pay cash for a > solumedrol drip, and then do it. Socialized medicine always sucks. Only > the rich can afford proper care that way. > In the meantime, only drink grape juice, tomato juice, orange juice, green > tea, and chocolate milk. Theres no need for water. That will give you > lots of antioxidents which help stem damage. > Rob > Rob
Response:
On Sat, 15 Jan 2005 19:39:01 GMT, "Nick" <b…@blah.com> wrote in alt.support.mult-sclerosis: > He told me that i’ll have to >wait to get into the MS clinic before any medication can be given. Which >should be 6-8 weeks and to hang in there. I have tried contacting the MS >clinic, but just get bumped to a voicemail and out of the 3 msg’s i’ve left >nothing has been returned. I guess i’ll have to step up the calls to see if >I at least can talk to someone!!! and maybe make a visit if I still get >nowhere with the calls.
You might have better luck by going in, Nick. I don’t know the nurses there now, Pauline retired about a year ago. The doctors there are good. I got in because I was seeing Dr. Bhan privately and asked him if I could see him in the clinic and he said yes. I would suggest you go in, ask them if they can help you and state your problem. "What is the best way to get a referral?" sort of thing. It is the only MS Clinic in N.S. and one busy place and the doctors aren’t there every day either. Good luck. — Joan
Response:
Living in Halifax, NS , This is extremely frustrating. I still wouldn’t have a dx if I didn’t enter outpatients in Nov, complaining about two numb feet. After a 8 hour wait before I was seen the doctor assumed it was a vitamin deficency. I told him that my GP has been trying since summer to get me a Neurologist. Low and behold 2 days later I had an apt with a neurologist. Just before xmas when I was last speaking with my neuro I told him how my symptoms are slowly getting worse. He told me that i’ll have to wait to get into the MS clinic before any medication can be given. Which should be 6-8 weeks and to hang in there. I have tried contacting the MS clinic, but just get bumped to a voicemail and out of the 3 msg’s i’ve left nothing has been returned. I guess i’ll have to step up the calls to see if I at least can talk to someone!!! and maybe make a visit if I still get nowhere with the calls. I’ve also been into my GP early this week, and told him the situation. He also said i’ll have to stick it out until I get into the ms clinic. He also mentioned that sometimes it takes up to 3-4 months to get in. He seemed to think the 6-8 weeks my neuro told me was good. I find this very sad, that I have to fight so fierce to get anything done, when 40% of my salary is gone in taxes as well as 15% on everything I buy. I’d much rather have a health system that I have to pay for everything, but that things would actually get done. I was off work for two weeks, between Dec 9 and xmas. But now i’m working part time mainly from home. I only have to head in maybe 2 days of the week. Still the office has some major heating problems and Friday when I was in the temp was 29. I had to leave I started having problems walking dizzy spells, not much sympathy from my co-workers and boss. I don’t want to get into the problems i’ve been having at work. Thanks for the advice. I guess i’ll have to start throwing my weight around. Its extremely hard when some days i’m so fatigued I just feel like lying down all day. Nick "Jennifer" <Jnos…@shaw.ca> wrote in message
news:9TaGd.85448$Xk.16510@pd7tw3no… – Hide quoted text — Show quoted text -> Rob, Solumedrol doesn’t help with symptoms really. It may hault an attack or > make it shorter. For me, they do diddly squat except make me gain weight, > turn into bitch woman, and become an insomniac. > Nick, where abouts in the country are you? If you make a pain of yourself > enough people do listen. AND when I had my first attacks (3 at least in a > row) I was 23 years old. I had one attack that left me not able to do much. > I started improving, went shopping at the mall ’cause I was excited I could > walk again, and ended up with another flare up lasting another few months. > Got better from that one and had another. > YOU NEED TO REST!. Don’t do walking, take a leave from work, etc. Trust me, > I basically didn’t do much for at least 6 months (sat at home, used a walker > and a cane) and here I am 3 years basically symptom free (ok, occasional > little flare but no major muscle weakness) > Call the MS clinic and ask to be on their wait list for cancellations. Go to > your GP and tell him/her how you are doing. When my GP suspected I had MS > she went and bugged pretty much everyone she knew because she was really > concerned about me. My neuro got me in for an MRI quickly because he bugged > and bugged people. I also got into the clinic faster because I basically > made such a nuisance they had to listen. > I’ll say it again..call the MS clinic and ask to speak to the relapse nurse. > Tell them whats going on and they will often be able to get you on steriods. > Be warned about them..they are nasty buggers and have nasty side effects but > do work for many people in stopping a flare up. > Jen > "Rob Duncan" <robdun…@gbronline.com> wrote in message > news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… > > "Nick" <b…@blah.com> wrote in message > > news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… > > > Does this seem like RRMS? > > > I’m a 24 yo male that was diagnosed with MS on the 22 of december. About > a > > > year ago or so I had a weird numbness in one or two fingertips that > lasted > > > a > > > month or so and dissapeared. Also I noticed that when I was bending my > > > neck > > > the numbness in my fingers worsened, thinking it was due to improper > > > posture and to much time on the computer! I ignored it. I didn’t really > > > start taking a real notice to my symptoms until July 04, I was on a > > > ASP.net > > > course and I noticed when I woke up in the morning, my left foot felt > > > numb > > > and my left leg didn’t seem to work correctly. Although it would move it > > > just kinda felt floppy. Over the next few days I had a altered > sensations > > > in > > > my left leg up to my groin area, I kept up my daily 3km walks with a > > > slight > > > limp and my leg seemed to come around after 2-3 weeks. The altered > > > sensations cleared up although I still had some numbness in my left > foot. > > > Early September 04 I had a couple bouts of extreme fatigue, one while I > > > was > > > picking up some groceries. It was like I came down with the flu in 30 > > > seconds, I had to finish up quick and went home to lay down. Between > > > Oct – > > > Nov I had some new symptoms, but they seemed to slowly worsen, and kind > of > > > blend together making it hard to tell if if they are attacks. The > fatigue > > > over this time seemed to stay over me like a black cloud. Stopping me > from > > > my walks and requiring me to take naps, every day after getting off from > > > work. The prior numbness I had in my left foot, worsened to the extent > of > > > not being able to feel my toes, then the bottom of my foot to the top. > > > Next > > > my right foot started getting numb as well. The muscles in my feet > started > > > getting extremly tight and stiff. Also during this time, I had a couple > > > nights where my jaw got extremely tired for no reason, and I wasn’t > eating > > > beef jerkey . I also noticed alot of sharp muscle twitches that would > > > happen all over my body, in my leg , fingers, arms, face. After > this > > > I > > > noticed both hands becoming shaky especially when holding something > heavy, > > > as well as extremly stiff fingers. These symptoms seemed to slowly > worsen > > > until Dec 9 when I was first able to see a Neuro, living in Canada and > our > > > medical system sucks! was waiting since July to see one. Anyways the > > > morning > > > of the 9th both legs seemed to be weak and my balance was off, it felt > > > like > > > I had one to many to drink. Neuro told me it was probable MS and I > needed > > > a > > > MRI, so I could either wait to get one through our medical system, > which > > > would be free, but i’d have to wait 4-6 months!!, or I could get a > > > private > > > MRI and get the results in a couple of days, hard choice! $1500 and a > > > week > > > later I recieved a call from my neuro on the 22nd of Dec telling me it > was > > > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my > > > legs > > > continued to weaken, and the fatigue was extreme, I had trouble walking > > > to > > > the bathroom without hanging on the walls. The weakness in my legs > slowly > > > improved over the last month, where I can walk up and down stairs pretty > > > quickly, and my balance has a improved a bit. I still sway when standing > > > still a bit and forget about walking a straight line with one foot in > > > front > > > of the other. But both feet remain extremely numb, i’ve stubbed my > toes > > > pretty bad a couple times and could barely feel anything. As of today > Jan > > > 14 > > > i’m noticing circulation problems , my fingernails and toenails are > blue > > > ish most of the time. Getting alot of stiffness in my left leg and > > > numbness > > > still remains in both feet. Hands are always tingly and shaky when > holding > > > something heavy or still for to long. I’m currently on a two month > > > waiting > > > list to get into the local MS clinic to get on betainferons and have yet > > > to > > > take anything for these symptoms no steroid treatment etc. > > > I’m just a kind of worried about my symptoms over the last few months, > > > being > > > more of a gradual decline then attacks. I wouldn’t mind getting some > > > opinions from people with experience! > > > Nick > > Im sorry youre stuck with Canadian healthcare. The damage Canadas > > healthcare has cost you may be irreversible. Drive to the states and > enter > > an ER and tell them your having an attack and will pay cash for a > solumedrol > > drip, and then do it. Socialized medicine always sucks. Only the rich > can > > afford proper care that way. > > In the meantime, only drink grape juice, tomato juice, orange juice, green > > tea, and chocolate milk. Theres no need for water. That will give you > lots > > of antioxidents which help stem damage. > > Rob > > Rob
Response:
Rob, Solumedrol doesn’t help with symptoms really. It may hault an attack or make it shorter. For me, they do diddly squat except make me gain weight, turn into bitch woman, and become an insomniac. Nick, where abouts in the country are you? If you make a pain of yourself enough people do listen. AND when I had my first attacks (3 at least in a row) I was 23 years old. I had one attack that left me not able to do much. I started improving, went shopping at the mall ’cause I was excited I could walk again, and ended up with another flare up lasting another few months. Got better from that one and had another. YOU NEED TO REST!. Don’t do walking, take a leave from work, etc. Trust me, I basically didn’t do much for at least 6 months (sat at home, used a walker and a cane) and here I am 3 years basically symptom free (ok, occasional little flare but no major muscle weakness) Call the MS clinic and ask to be on their wait list for cancellations. Go to your GP and tell him/her how you are doing. When my GP suspected I had MS she went and bugged pretty much everyone she knew because she was really concerned about me. My neuro got me in for an MRI quickly because he bugged and bugged people. I also got into the clinic faster because I basically made such a nuisance they had to listen. I’ll say it again..call the MS clinic and ask to speak to the relapse nurse. Tell them whats going on and they will often be able to get you on steriods. Be warned about them..they are nasty buggers and have nasty side effects but do work for many people in stopping a flare up. Jen "Rob Duncan" <robdun…@gbronline.com> wrote in message
news:nPSdnUv1WMlIb3XcRVn-3w@gbronline.com… – Hide quoted text — Show quoted text -> "Nick" <b…@blah.com> wrote in message > news:2j2Gd.209217$Np3.8890260@ursa-nb00s0.nbnet.nb.ca… > > Does this seem like RRMS? > > I’m a 24 yo male that was diagnosed with MS on the 22 of december. About a > > year ago or so I had a weird numbness in one or two fingertips that lasted > > a > > month or so and dissapeared. Also I noticed that when I was bending my > > neck > > the numbness in my fingers worsened, thinking it was due to improper > > posture and to much time on the computer! I ignored it. I didn’t really > > start taking a real notice to my symptoms until July 04, I was on a > > ASP.net > > course and I noticed when I woke up in the morning, my left foot felt > > numb > > and my left leg didn’t seem to work correctly. Although it would move it > > just kinda felt floppy. Over the next few days I had a altered sensations > > in > > my left leg up to my groin area, I kept up my daily 3km walks with a > > slight > > limp and my leg seemed to come around after 2-3 weeks. The altered > > sensations cleared up although I still had some numbness in my left foot. > > Early September 04 I had a couple bouts of extreme fatigue, one while I > > was > > picking up some groceries. It was like I came down with the flu in 30 > > seconds, I had to finish up quick and went home to lay down. Between > > Oct – > > Nov I had some new symptoms, but they seemed to slowly worsen, and kind of > > blend together making it hard to tell if if they are attacks. The fatigue > > over this time seemed to stay over me like a black cloud. Stopping me from > > my walks and requiring me to take naps, every day after getting off from > > work. The prior numbness I had in my left foot, worsened to the extent of > > not being able to feel my toes, then the bottom of my foot to the top. > > Next > > my right foot started getting numb as well. The muscles in my feet started > > getting extremly tight and stiff. Also during this time, I had a couple > > nights where my jaw got extremely tired for no reason, and I wasn’t eating > > beef jerkey . I also noticed alot of sharp muscle twitches that would > > happen all over my body, in my leg , fingers, arms, face. After this > > I > > noticed both hands becoming shaky especially when holding something heavy, > > as well as extremly stiff fingers. These symptoms seemed to slowly worsen > > until Dec 9 when I was first able to see a Neuro, living in Canada and our > > medical system sucks! was waiting since July to see one. Anyways the > > morning > > of the 9th both legs seemed to be weak and my balance was off, it felt > > like > > I had one to many to drink. Neuro told me it was probable MS and I needed > > a > > MRI, so I could either wait to get one through our medical system, which > > would be free, but i’d have to wait 4-6 months!!, or I could get a > > private > > MRI and get the results in a couple of days, hard choice! $1500 and a > > week > > later I recieved a call from my neuro on the 22nd of Dec telling me it was > > definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my > > legs > > continued to weaken, and the fatigue was extreme, I had trouble walking > > to > > the bathroom without hanging on the walls. The weakness in my legs slowly > > improved over the last month, where I can walk up and down stairs pretty > > quickly, and my balance has a improved a bit. I still sway when standing > > still a bit and forget about walking a straight line with one foot in > > front > > of the other. But both feet remain extremely numb, i’ve stubbed my toes > > pretty bad a couple times and could barely feel anything. As of today Jan > > 14 > > i’m noticing circulation problems , my fingernails and toenails are blue > > ish most of the time. Getting alot of stiffness in my left leg and > > numbness > > still remains in both feet. Hands are always tingly and shaky when holding > > something heavy or still for to long. I’m currently on a two month > > waiting > > list to get into the local MS clinic to get on betainferons and have yet > > to > > take anything for these symptoms no steroid treatment etc. > > I’m just a kind of worried about my symptoms over the last few months, > > being > > more of a gradual decline then attacks. I wouldn’t mind getting some > > opinions from people with experience! > > Nick > Im sorry youre stuck with Canadian healthcare. The damage Canadas > healthcare has cost you may be irreversible. Drive to the states and enter > an ER and tell them your having an attack and will pay cash for a solumedrol > drip, and then do it. Socialized medicine always sucks. Only the rich can > afford proper care that way. > In the meantime, only drink grape juice, tomato juice, orange juice, green > tea, and chocolate milk. Theres no need for water. That will give you lots > of antioxidents which help stem damage. > Rob > Rob
Response:
Does this seem like RRMS? I’m a 24 yo male that was diagnosed with MS on the 22 of december. About a year ago or so I had a weird numbness in one or two fingertips that lasted a month or so and dissapeared. Also I noticed that when I was bending my neck the numbness in my fingers worsened, thinking it was due to improper posture and to much time on the computer! I ignored it. I didn’t really start taking a real notice to my symptoms until July 04, I was on a ASP.net course and I noticed when I woke up in the morning, my left foot felt numb and my left leg didn’t seem to work correctly. Although it would move it just kinda felt floppy. Over the next few days I had a altered sensations in my left leg up to my groin area, I kept up my daily 3km walks with a slight limp and my leg seemed to come around after 2-3 weeks. The altered sensations cleared up although I still had some numbness in my left foot. Early September 04 I had a couple bouts of extreme fatigue, one while I was picking up some groceries. It was like I came down with the flu in 30 seconds, I had to finish up quick and went home to lay down. Between Oct – Nov I had some new symptoms, but they seemed to slowly worsen, and kind of blend together making it hard to tell if if they are attacks. The fatigue over this time seemed to stay over me like a black cloud. Stopping me from my walks and requiring me to take naps, every day after getting off from work. The prior numbness I had in my left foot, worsened to the extent of not being able to feel my toes, then the bottom of my foot to the top. Next my right foot started getting numb as well. The muscles in my feet started getting extremly tight and stiff. Also during this time, I had a couple nights where my jaw got extremely tired for no reason, and I wasn’t eating beef jerkey . I also noticed alot of sharp muscle twitches that would happen all over my body, in my leg , fingers, arms, face. After this I noticed both hands becoming shaky especially when holding something heavy, as well as extremly stiff fingers. These symptoms seemed to slowly worsen until Dec 9 when I was first able to see a Neuro, living in Canada and our medical system sucks! was waiting since July to see one. Anyways the morning of the 9th both legs seemed to be weak and my balance was off, it felt like I had one to many to drink. Neuro told me it was probable MS and I needed a MRI, so I could either wait to get one through our medical system, which would be free, but i’d have to wait 4-6 months!!, or I could get a private MRI and get the results in a couple of days, hard choice! $1500 and a week later I recieved a call from my neuro on the 22nd of Dec telling me it was definate RRMS, 2 lesions in the brain and 2 on the spine. Meanwhile my legs continued to weaken, and the fatigue was extreme, I had trouble walking to the bathroom without hanging on the walls. The weakness in my legs slowly improved over the last month, where I can walk up and down stairs pretty quickly, and my balance has a improved a bit. I still sway when standing still a bit and forget about walking a straight line with one foot in front of the other. But both feet remain extremely numb, i’ve stubbed my toes pretty bad a couple times and could barely feel anything. As of today Jan 14 i’m noticing circulation problems , my fingernails and toenails are blue ish most of the time. Getting alot of stiffness in my left leg and numbness still remains in both feet. Hands are always tingly and shaky when holding something heavy or still for to long. I’m currently on a two month waiting list to get into the local MS clinic to get on betainferons and have yet to take anything for these symptoms no steroid treatment etc. I’m just a kind of worried about my symptoms over the last few months, being more of a gradual decline then attacks. I wouldn’t mind getting some opinions from people with experience! Nick
Response:
– Stop in the first gaz station and ask the cashier where you can find a nice coffee. – Go there with the direction he/she gave you. – Once you get there. Get a coffee or something and spot someone alone. Preferably someone who hasn’t finished (You can also spot a group of 2 or 3) – Walk to him/her or them, just say Hi! I am alone and looking to chat may I sit with you? – It will probably work, if it don’t work don’t worry and just take some news paper and read. – If it work you can talk of a lots of topics. Try to learn whats fun in this city etc… – This is the last step : Enjoy now the new social extroverted person youve became. Don’t ever tell you it’s ridiculous. Just get in your car and go!!!! Without thinking. You should try the fun places youve learned about too. Make some fun!!! JP 
— RK 
I don’t really have any other ideas on what her problem might be. I don’t think you’re doing anything wrong based on what you’ve said, and I think that unless you’re approaching her more than once a day, it reflects poorly on her that she’s turning down sex. Married people should really make it a general rule to say yes to their spouse, unless there’s a really valid reason to say no (like they have the flu, a painful yeast infection, etc.). -=Lola – Hide quoted text — Show quoted text -Don wrote: > Dolores <weaselpant…@sinmonkey.com> wrote in message <news:uZ-dnX-2btMkcA7cRVn-3w@comcast.com>… >>An hour a day five days a week isn’t that much. I suspect that the real >>problem she has is that she wants to spend more time with you, but in >>typical american-style is afraid to just say so because then you might >>say no and she’ll feel unwanted. Maybe you could find a form of >>excercise that you can do together? Hiking, walking, running, bicycling, >>sex? > She never tells me that. I am always suggesting we do stuff togther. I > even took her shopping all day last Saturday. When we are toghter > during the weeknight she is doing some house work or more times than > not reading a book. > I have told her before I would like to go hiking but she is not an > "outdoors" person. > I have never once in my life turned down sex! (Although unfortunately > she has, a lot!)