Run Run Away

Question:

hi qq, i know that 5 months doesn’t come anywhere near your 10 years but I know the devestation you feel when you believe it’s under control & it hits you again without warning. The following is an overview of a conversation between me & my G.P.: EEG – this is not a stand alone diagnostic procedure but is generally used to confirm or strengthen a medical opinion. MRI – like a nuclear medicine scan, it may show absolutely nothing. It doesn’t mean there’s nothing there, it just means that it’s too small too see. Physical Condition – I was in the Army for 13 yrs before being discharged medically unfit (with epilepsy). I was very fit & had been immunised against everything but bullets (& epilepsy). Physical fitness, lack of it or the presence of weird & wonderful anti-bodies floating around in your system have nothing to do with it. I know this doesn’t resolve anything for you but I hope my explanations at least give you an overview of tests & results. P.S. Someone should blow up all the EEG strobe lights. – Hide quoted text — Show quoted text -<qq> wrote in message news:3bdc6e8d$0$92383$45beb828@newscene.com… > x-no-archive: yes > When I was a kid  video games induced seizures. When I was in college I had > another eeg, the strobe lights didn’t induce a seizure, so I was able to > drive…..Now it’s ten years later. I went unconscious from 2 seizures, 1 > six months ago and the other a year ago. I don’t get it, the only time I > went unconscious when I was a kid was when I played video games. There were > no video games or lights these last 2 times. When I had the seizure a year > ago, I was *really* exhausted, I can under stand that one. Six months ago I > had the seizure when I got up in the morning. I didn’t get a lot of sleep, > but it should have been enough sleep. How does the rest of your physical > health factor into this ? I got a lot more exercise and had a lot less > stress when I was in college. They couldn’t induce a seizure on my last eeg, > and the mri was ok. I’m not taking any drugs now….thanks

Response:

In my case, health HAS played a role in the appearance of seizure symptoms; sometimes not all the symptoms though.  One time I had two abscesses under two teeth which I did not know were there (no discomfort), but I was running a slightly elevated daily temperature for months.  After surgery, the seizure symptoms immediately vanished and my temperature returned to normal.  Similar events have happened two other times, once with the flu and another time with a blood clot in the leg (both accompanied by elevated temperature). Simple colds or very short elevations in temperature don’t seem to bother my brain.  It’s those elevated temperatures that return day after day that are a problem. Barb – Hide quoted text — Show quoted text -Microwave wrote: > hi qq, i know that 5 months doesn’t come anywhere near your 10 years but I > know the devestation you feel when you believe it’s under control & it hits > you again without warning. > The following is an overview of a conversation between me & my G.P.: > EEG – this is not a stand alone diagnostic procedure but is generally used > to confirm or strengthen a medical opinion. > MRI – like a nuclear medicine scan, it may show absolutely nothing. It > doesn’t mean there’s nothing there, it just means that it’s too small too > see. > Physical Condition – I was in the Army for 13 yrs before being discharged > medically unfit (with epilepsy). I was very fit & had been immunised against > everything but bullets (& epilepsy). Physical fitness, lack of it or the > presence of weird & wonderful anti-bodies floating around in your system > have nothing to do with it. > I know this doesn’t resolve anything for you but I hope my explanations at > least give you an overview of tests & results. > P.S. Someone should blow up all the EEG strobe lights. > <qq> wrote in message news:3bdc6e8d$0$92383$45beb828@newscene.com… > > x-no-archive: yes > > When I was a kid  video games induced seizures. When I was in college I > had > > another eeg, the strobe lights didn’t induce a seizure, so I was able to > > drive…..Now it’s ten years later. I went unconscious from 2 seizures, 1 > > six months ago and the other a year ago. I don’t get it, the only time I > > went unconscious when I was a kid was when I played video games. There > were > > no video games or lights these last 2 times. When I had the seizure a year > > ago, I was *really* exhausted, I can under stand that one. Six months ago > I > > had the seizure when I got up in the morning. I didn’t get a lot of sleep, > > but it should have been enough sleep. How does the rest of your physical > > health factor into this ? I got a lot more exercise and had a lot less > > stress when I was in college. They couldn’t induce a seizure on my last > eeg, > > and the mri was ok. I’m not taking any drugs now….thanks

Response:

Someone who wished to remain anonymous said: >Thanks guys. My doctor is very good, and this reminds me of what he said. >Fatigue can’t cause seizures, like if your job is boring or if you exercise >a lot. He said the hyperventilating you do during an eeg is different from >exercise.

How is it different? Really vigorous exercise (marathon running, playing squash) triggers my seizures. The first sign when I’m running is that my breathing becomes voluntary and irregular. If I don’t think about it, I forget to breathe. I’ve wondered whether this is a hyperventilation problem. IIRC breathing rate is in response to amount of carbon dioxide in the lungs, not the amount of oxygen in the bloodstream. So if I’ve blown all the CO2 out of my lungs by hyperventilating, my body thinks it’s running fine, and obviously doesn’t need any more oxygen. Or is there an error in my thinking? Anyone else have exercise triggered seizures who can throw some light on this? — Malcolm     http://www.mtdomain.demon.co.uk

Response: